Biene (einebiene@quitter.is)'s status on Tuesday, 04-Apr-2017 19:47:21 UTC
BieneI'm pretty pissed off. I just read up on the software that goes with my blood glucose monitor, and it turns out the company (and their partners) will have access to all my data. That's pretty damn intimate. When I eat and how much, when I sleep, how often I inject or check my blood sugar levels. And there's no way around that. And I get the feeling I also have to switch back to windows. :-(
In a perfect world yes, and I totally agree with you. But what can I do? If I agree to this licence agreement and do something else they get me in trouble. And not signing it means not using the software, which means not being able to work with my doctor.
Ah, isn't his wonderful! This software will also have ADVERTISEMENTS, and I'm only halfway through reading the licence agreement. I wonder what will be next.
Sadly, tying medical equipment to non-free software is all too common. You're right, it's a huge privacy violation, and the End-User-Licence-Agreement allowing them to insert ads in your readouts just makes it worse. Do they make you sign up for an Outlook or Facebook account to keep up-to-date? I hope not. We need more !OpenHardware that runs !FreeSoftware.
The best-known case of non-free medical hardware is probably that of Karen Sandler ( @o0karen0o on #Twitter ), who wondered about the lack of access to source code for her pacemaker: https://www.youtube.com/watch?v=nFZGpES-St8 @einebiene
And there's the terrifying story of Barnaby Jack, who was to give a Defcon talk revealing how to send a pacemaker a signal to deliver a high-voltage shock from a distance. He was found dead days before his scheduled appearance. https://www.rt.com/usa/hacker-pacemaker-barnaby-jack-639/